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Tuesday, February 1, 2011

Advocacy

As many of you know, I've been working on the Standards of Care Bill here in Missouri. This year I've been to Jefferson City a couple times and already written numerous thank you notes. I feel like this is the year for Missouri! On March 1st we will meet in Jefferson City for "Bleeding Disorders Awareness Month". We are hoping (cross our fingers) that we will even get to meet the Governor! I would love to see many families come and show your support on this day! Because of our CSL Behring Grant your family might be eligible for mileage reimbursement. I'll post details on FB and here as they come.

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