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Tuesday, February 1, 2011

CSL Grant

In the fall I applied for an advocacy grant from CSL Behring on behalf of the Midwest Hemophilia Chapter. I am attaching the grant below!

CSL BEHRING AWARDS GRASSROOTS ADVOCACY GRANT
TO MIDWEST HEMOPHILIA ASSOCIATION IN KANSAS CITY, MO
Grant provides support for patient initiative to obtain passage of Standards of Care.

King of Prussia, Pennsylvania, January 20, 2011 – CSL Behring, a global leader in the plasma protein biotherapies industry and a subsidiary of CSL Limited (ASX:CSL), has awarded an advocacy grant to the Midwest Hemophilia Association (MHA) through the Local Empowerment for Advocacy Development (LEAD) program. LEAD grants support the grassroots advocacy efforts of organizations committed to helping people who use plasma-derived or recombinant therapies to manage rare and serious diseases.

MHA will use its LEAD grant to bolster legislative efforts in support of passage of Standards of Care for People with Bleeding Disorders in Missouri. In addition, MHA will start grassroots advocacy in Kansas and also help educate the public about women’s bleeding disorders.
“MHA is delighted to receive this generous LEAD grant from CSL Behring. This grant will help our ultimate goal to make all our members better self-advocates,” Kristin Marema, MHA Board Member, said.
LEAD grants total $500,000 since 2008
According to Dennis Jackman, CSL Behring’s Senior Vice President, Public Affairs, the company has awarded 33 grants totaling approximately $500,000 since the LEAD program was established in 2008. Almost $100,000 was awarded in the current grant cycle to six patient organizations including MHA.
“CSL Behring is pleased to recognize and support these organizations, all of which play a vital role in expanding patient access to information and healthcare,” said Dennis Jackman, Senior Vice President, Public Affairs, CSL Behring. “We hope that these grants will help improve the lives of people with bleeding disorders, immune deficiencies and hereditary angioedema.”

Advocacy

As many of you know, I've been working on the Standards of Care Bill here in Missouri. This year I've been to Jefferson City a couple times and already written numerous thank you notes. I feel like this is the year for Missouri! On March 1st we will meet in Jefferson City for "Bleeding Disorders Awareness Month". We are hoping (cross our fingers) that we will even get to meet the Governor! I would love to see many families come and show your support on this day! Because of our CSL Behring Grant your family might be eligible for mileage reimbursement. I'll post details on FB and here as they come.